AACVPR Outpatient Pulmonary Rehabilitation Data Registry

 

 

 

 

The AACVPR Outpatient Pulmonary Rehabilitation Registry will be a powerful tool for tracking patient outcomes and program performance in meeting evidence-based guidelines for secondary prevention of pulmonary disease. It will provide pulmonary rehabilitation programs with national outcomes data for benchmarking and demonstrate the positive impact of pulmonary rehabilitation on the morbidity, mortality, physical function, and quality of life of pulmonary patients across the United States.

  • Access program and patient data reports instantly, and benchmark your results against national averages.
  • Implement quality improvement projects based on real data, and enhance documentation for administrators and referring physicians.
  • Influence healthcare policy makers to utilize cardiac and pulmonary rehabilitation, and improve coverage and reimbursement rates for your program. 

The Registry Is Now Live!

The AACVPR Outpatient Pulmonary Rehabilitation Registry officially launched on Wednesday, June 19, 2013, with a live training Webcast.

The Webcast touched briefly upon the subscription process and reasons for the registry, along with the how-tos of using the registry platform.

Click here to read FAQs from the Webcast.

Click Here to view the 28th Annual Meeting Breakout Session "AACVPR Pulmonary Rehabilitation Registry Update" at no cost!

Start Your Subscription

Access to the registry is based on a program subscription.

AACVPR Registry Participation Instructions for New Programs (Word doc) 
AACVPR Registry Participation Instructions for Renewing Programs or Users Requesting API Connection (Word doc)

Each participating program must establish a principal user for the registry; this is the main contact between AACVPR and the program.

  • If your program already has a principal registry user, you do not need to complete the Principal User Contact Form to continue the subscription process.
  • If you need to be set up as the principal user for your program, please complete the form at the bottom of this page and you will be sent next steps information via e-mail within three (3) business days.

AACVPR Outpatient Pulmonary Rehabilitation Registry Protocol (PDF)

Participation Agreement (Word doc)

For renewing Registry subscribers: Amendment to Participation Agreement (Word doc)

Each participating program will need to have the Participation Agreement signed. In order to make the process as efficient as possible for you and for us, please do the following:

  • Insert the full and legal name of the entity that will be entering into the agreement on Page 12 where indicated;
  • In section 9.12, add the address where you would like notices sent, including the name of the person to whom the notice should be addressed;
  • If you have any requested revisions, please make those revisions directly on the document in a way that clearly shows the changes (i.e. "track" changes in the Word document); and
  • Please do not make revisions and send us a PDF document. We cannot accept PDFs. Please send back a Word document with your tracked changes.
  • Please note: All programs must use the provided Registry Participation Agreement, which includes a fully compliant HIPAA Business Associate Agreement and a HIPAA Data Use Agreement. Read more.

All correspondence regarding the registry should be sent to the postal address provided in the Participation Agreement or to registry@aacvpr.org.

Registry Log-in for Current Users

Registry Resources

PR Registry Launch Webcast Frequently Asked Questions - Updated June 2013

Frequently Asked Questions - Updated April 2014

Why Participate
Subscription
Data Collection
Reporting
Patient Privacy and HIPAA Compliance
AACVPR Program Certification Integration
Registry Development

Legal FAQs *NEW*

Data Elements (PDF)

Data Collection Sheet (Word)

Follow-up Data Collection Sheet (Word)

Definitions and Comments for Selected Data Elements (PDF)

PR Outcomes Resource Guide (Toolkit)

Registry Sponsors & Development

AACVPR would like to thank the following sponsors of the Outpatient Pulmonary Rehabilitation Registry for their support:

Founding Sponsor:

Additional support provided by:





The AACVPR Outpatient Pulmonary Rehabilitation Registry is endorsed by


The Registry was developed by Cissec Corporation of Kingston, Ontario, in cooperation with SmithBucklin and AACVPR.

Only Principal Users should complete this contact form to start the subscription process.
It will then be the Pulmonary Rehab Registry Principal Users' responsibility to establish access and identify roles for all other Registry users at his/her program.

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